Texans For Cures Engagement In US Policy Making

Texans for Cures first day of advocacy proved to be very productive.

We were joined by Beth Roxland, an Associate of the Division of Medical Ethics at NYU School of Medicine and a Senior Legal and Health Policy Consultant to law firms, academic medical centers, and research entities.

Together with myself, Jack Frazee and Beth Roxland, we set out to communicate the importance of sound policy when it comes to patient safety.

Jack, Beth, David

The “Right To Try” movement is rooted in the idea that the patient should be given back control to determine their own medical treatment.

It’s advocates believes the FDA should not be dictating what research drugs are available to terminally ill patients. The “Right To Try” legislation would give patients access to medications or therapies that have not passed the rigors of clinical trials. It would remove FDA oversight authority and allow the states to fashion their own programs.

Texans For Cures feels that the law could harm patients and there would be no adequate standards to insure public safety.

We are asking the legislators to help in fighting the misguided movement to insure a clinical trial process that insures those drugs made available to public are safe and not experimental. We have seen too many cases where these experimental drugs were administered when irreversible damage occurred and even death.

People don’t realize once these types of therapies are administered, there is no going back. You don’t wait for the drug to wear off. Your body’s physiology is irrevocable changed forever.

Here is a Round-Up of our days events. Each member’s staff seemed receptive to our concerns about patient protections and we look forward to working with Senator Johnson’s office to try and improve the bill.

Rep. Lloyd Doggett  

Senator Chuck Schumer

Senator Lamar Alexander

Senator Ron Johnson

Senator Richard Blumenthal

We all want to thank Jack Frazee and Beth Roxland for their tireless efforts today which will surely continue all week!

Thanks to all of you following our efforts and stay tuned!!!

 

Texas Regenerative Medicine Summit in Austin Fall of 2017
The Summit will be Chaired by Dr. Doris Taylor and will feature Legislative and Scientific Panels and other key members instrumental in HB 810, which passed this session. Leading scientists statewide will also participate.
If your company desires to have a voice at this Summit, we encourage you to contact us at texansforcures.org or call David L. Bales at 512.797.2703 / bales@texansforcures.org.

 

Texans For Cures Goes To Washington

David L. Bales, Chairman of Texans for Cures and Jack Frazee, the newest member of TFC’s Advisory Council and resident Right to Try expert headed to D.C.

TFC will continue protecting patients and responsible researchers from poorly written Right to Try legislation which can open the door for medical fraud and abuse by unsavory characters.

TFC’s success in Texas has fueled our desire to stop upcoming legislation in the United States Congress. There exists a potential to pass poor legislation that will re-create here in the US, the atmosphere that currently exists in other countries.

Clinics with no track records, with low percentages of success rates, taking money from desperate families for unproven therapies.

We begin our advocacy and education at 9 AM EST tomorrow when we meet with Representative Lloyd Doggett, followed by a meeting with Senator Chuck Schumer and then the Senate’s author, Ron Johnson.

U.S. Sen. Ron Johnson
(Photo: Jim Matthews/USA TODAY NETWORK-Wisconsin)

We feel the same arguments we recently made in Texas should serve us well with these members.

85th Texas Legislative Session – Protecting Patients and Responsible Research!
Mary Scala, Texans For Cures – June 14 2017

Texans for Cures, with incredible support from many of you, helped quash HB 3236 (patient pay) and HB 661 (patient access to unproven biological drugs and devices). And, with the leadership of Senators Schwertner, Taylor, and Watson, and State Rep. Garnet Coleman, added patient protections which greatly improved HB 810. As originally written, this bill would have made Texas the true, “Wild West” and created a situation where unscrupulous stem cell operators could thrive.

Stay tuned and wish us well! This will be another battle and we intend to win!

Jack Frazell and David Bales

 

Texas Regenerative Medicine Summit in Austin Fall of 2017
The Summit will be Chaired by Dr. Doris Taylor and will feature Legislative and Scientific Panels and other key members instrumental in HB 810, which passed this session. Leading scientists statewide will also participate.
If your company desires to have a voice at this Summit, we encourage you to contact us at texansforcures.org or call David L. Bales at 512.797.2703 / bales@texansforcures.org.

Texas Regenerative Medicine Summit in Austin Fall of 2017

Dr. Taylor Achieved International Recognition For Her Work

Dr. Doris Taylor, Texas Heart Institute’s Regenerative Medicine Laboratories Director, was honored at the 14th International Symposium on Stem Cell Therapy and Cardiovascular Innovations in Madrid, Spain, this month, receiving the 4th Madrid Award for Excellence in Basic and Preclinical Cardiovascular Regenerative Research. The award – which was voted on by her peers – recognizes Dr. Taylor for her leadership and success in critical research that is paving the way for cell therapy clinical trials that could significantly impact how we treat chronic cardiovascular conditions and heart failure in the near future.

In 2008, Dr. Taylor achieved international recognition for her work in the field of regenerative medicine, then in its infancy stage. Since then, her work has continued to receive global acknowledgement for breakthroughs related to cell therapy, stem cell biology and tissue engineering-based therapies. Dr. Taylor’s recent work has uncovered differences in the underlying framework of male and female hearts and other vital organs, and may hold the key to the success of cell therapy.

Dr. Taylor with Dr. Fernández Avilés at 14th International Symposium on Stem Cell Therapy & Cardiovascular Innovations in Madrid, Spain June 2017

Dr. Taylor is a leader in the worldwide effort to harness reparative cells that lie within our own bodies to treat and cure conditions and chronic diseases that cause immense human suffering around the world. Regenerative therapies are undoubtedly the greatest future hope in the battle against chronic diseases, such as cardiovascular failure, and the urgent need to address this challenge within an international framework of excellence is critical to moving these promising therapies into standard practice.

Through partnerships and collaborations fostered by conferences like the International Symposium in Madrid and the upcoming Texas Heart Institute International Symposium on CV Regenerative Medicine, Dr. Taylor and leaders around the world are able to push the bounds of discovery in the field of regenerative medicine, establishing ways to advance both basic science and translational research to find new and improved
methods to cure cardiovascular disease.

Source: Dr. Taylor Achieved International Recognition For Her Work